The personal memoir from the family that inspired the film Extraordinary Measures
Chasing Miracles
The Crowley Family Journey of Strength, Hope, and Joy
by John Crowley
When John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder, they didn't hope for miracles: they made them happen.
In 1998, 15-month-old Megan and 4-month old Patrick were diagnosed with Pompe disease, a fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. The Crowleys were told to take their children home and "enjoy their short time together...there is nothing that can be done."
Determined to save his children's lives, John Crowley walked away from the corporate world to help co-found a start-up biotech company, focused exclusively on producing a life-saving medicine. In Chasing Miracles, he writes from his heart about how he and his wife set out to do "whatever it takes" against phenomenal odds to help Megan and Patrick survive and thrive, and tells about not losing faith, coping with adversity, and what it means to never, never quit.
